Ready for Some Good Days

It was a week ago today that Paul's back pain set in. As it subsided a few days later, it was replaced by a mysterious neck pain much like he had a month or so ago. We never figured out what caused the neck pain then, and this time it is still unknown. It could be related to tumor although nothing was seen on any scans in his neck and known disease sites aren't given him any problems; it could be related to the therapy, but he wasn't on therapy with the last neck pain, and there aren't any known toxicities cited about the neck (although part of this trial is about discovering toxicities); or, it could be a virus of some kind irritating his lymph nodes...or some other unrelated problem. Whatever its source hopefully this round of neck pain will subside like the other, and we may have seen some signs of improvement today. After this rough week we are all ready to enjoy some good days together...especially Paul. Please continue to pray for his pain to subside and for the immunotherapy to be doing its work.

For the advanced Saxon web troller (you know who you are), I am pasting in a web link for the Childrens Neuroblastoma Research Foundation (see below). Here you can see/hear a talk given by Dr. Paul Sondel, our clinical trial's "study chairman," where he gives an excellent presentation on immunotherapy and how it works.

Childrens Neuroblastoma Research Foundation Web Link