"Good" day
It's 11pm, and I am sitting next to Paul as we watch Parent Trap. This would never fly in the Saxon home, but here in the Cook Luxurious Inn & Suites, you do fun stuff when you can. And that's been the story today. I would say that Paul has actually had a "good" day. His pain has been controlled, and he only complained about his stomach after throwing back the oral chemo (which smells like something you would use to unclog a sink). Highlights include a visit from Gabe and family. They brought a much awaited Lego that he started. Paul requested a trip to the gift shop (where I am unable to refuse him anything), and that turned into a coin finding excursion to all the familiar coin discovering haunts in the hospital. Paul did a good deal of walking while we were out, and I was sure glad to see him getting some exercise.
The effect from last night's NG tube melee has mostly faded, and Paul has only mentioned it once and with pride (to a nurse where he described how bad it was). Another badge of courage. We did something today that should have happened a long time ago (and I mostly blame myself for the delay). A ped. GI doc came by, and he and I talked for about an hour about Paul's GI problems. He decided that Paul was at high risk for several things that could be causing so many of his problems; among those mentioned are strictures in the esoph., fungal ulcers, GERD, and some other treatable things. He'll do an endoscope on Paul on Monday prior to the G tube placement. Pray that we can get some new information that can help him.
Monday will be a busy and stressful day. Please make is a priority prayer.
The effect from last night's NG tube melee has mostly faded, and Paul has only mentioned it once and with pride (to a nurse where he described how bad it was). Another badge of courage. We did something today that should have happened a long time ago (and I mostly blame myself for the delay). A ped. GI doc came by, and he and I talked for about an hour about Paul's GI problems. He decided that Paul was at high risk for several things that could be causing so many of his problems; among those mentioned are strictures in the esoph., fungal ulcers, GERD, and some other treatable things. He'll do an endoscope on Paul on Monday prior to the G tube placement. Pray that we can get some new information that can help him.
Monday will be a busy and stressful day. Please make is a priority prayer.
posted by Saxon Report at 10:07 PM
3 Comments:
You guys are dearly loved and we are constantly lifting you up to our Heavenly Father.
Hope you guys are in bed by now getting some sleep. Ya'll are in our prayer always!
We so wish that this crummy stuff would stop happening and that Paul would be free of pain, nausea, bumps, swelling, tubes, needles, and all the other things that a sweet six year-old should not have to be experiencing. We are grateful to hear that he is feeling a little bit better - able to go on his coin-hunt excursions and work with his Lego sets.
Please know that our prayers continue and that we will be thinking of you on Monday...as always, praying for guidance of the doctors, strength, courage and guidance for you and Leigh and healing for Paul...among many other things for your precious family.
What a brave young man you have for a son. He is a hero to many of us.
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