Happy 4th!!
It is good to have everyone at home for the Holiday weekend. I follow a few other kids' webpages, and I know it is not the case for many of them. Even though things have been a bit stressful this and last week, at least we are home. That is easy to take for granted when you have a sick kid. We are thankful for all that we have been blessed with regarding Paul.
Speaking of Paul, we continue to measure his improvement in gradual, small increments. He seems to need pain medicine less often; when he gets it, it seems to be more effective. His sleep has been a little better, and we have seen longer and more frequent flashes of the good ol' Paul in the last day or so. Overall, he does seem to be moving in the right direction, but it has been very slow. Yesterday Paul had a pretty stubborn nosebleed which suggests that his blood counts (e.g., platelets) may be down. If so, he may be anemic as well. We may do a CBC this week to check even though the protocol doesn't require one until next Tuesday.
Anyway, as I said, Paul seems to make some improvement each day. Please continue to pray for his pain to resolve.
Speaking of Paul, we continue to measure his improvement in gradual, small increments. He seems to need pain medicine less often; when he gets it, it seems to be more effective. His sleep has been a little better, and we have seen longer and more frequent flashes of the good ol' Paul in the last day or so. Overall, he does seem to be moving in the right direction, but it has been very slow. Yesterday Paul had a pretty stubborn nosebleed which suggests that his blood counts (e.g., platelets) may be down. If so, he may be anemic as well. We may do a CBC this week to check even though the protocol doesn't require one until next Tuesday.
Anyway, as I said, Paul seems to make some improvement each day. Please continue to pray for his pain to resolve.

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